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  • #43198
    tjoa10
    Participant

    Does anyone have any experience or insight about blood testing for HSV1 and HSV2? Last year October I was tested for every STD, including HSV 1&2. It was after I got out of a bad relationship and hadn’t had sex with anyone (even my boyfriend) for at least 8 months to 1 year. All tests came back negative. Fast forward 9 months, I am in a new relationship and am now having my first outbreak. I did not have sex with anyone up until this new relationship. Could I have contracted the virus from my previous partner almost 2+ years ago, have negative blood test results, and just now have my first outbreak? Or is it more likely I contracted from my new partner? I know it doesn’t matter where I got it, what’s done is done, but I honestly wouldn’t be mad if it was a recent exposure, I’d actually be relieved that I didn’t just expose him now.

    #43014
    runin4life
    Participant

    Hi Everyone,
    I received the terrifying news last week that I have both HSV-1 and HSV-2. I went to my OBGYN because I’ve been having recurring outbreaks of bacterial vaginosis, but I also developed 2 sores on my labia around the same time. My boyfriend and I really thought the sores were friction blisters because we weren’t having vaginal sex due to the BV and using other measures to fulfill our sex drives (if you follow me). So I figured I’d ask my doctor about this during my exam. She took a quick look and told me it was herpes (OMG!!! Complete SHOCK!!!). She didn’t do a swab test because there were no supplies due to COVID testing. I asked about treatment and she brushed me off saying it wasn’t necessary because I have a boyfriend (ridiculous advice). After leaving the appointment I learned there was a blood test and requested I get this done to have some sort of confirmation…which came back positive for HSV-1 and HSV-2. My concern is that my symptoms were not at all consistent with a normal outbreak. I only had 2 sores, they never blistered- just turned into small “lesions”, and I never had any scabbing when they were healing. They just went away. So is there a chance my test was a false positive? I’ve read a lot about this being a possibility. PS- My boyfriend is so freaked out we’re likely breaking up because of this nightmare. I don’t know what to do!!!

    Thanks for your advice…

    #42997

    In reply to: Urgent help/ advice

    Chelsey
    Participant

    Im actually in the same boat I developed a bump after having protected sex doctors suspected it might be herpes did a viral swab came back negative but after researching I needed more clarification so after 3 months I tested negative at 8 months still testing negative and now its been a year and Im still negative with no antivirals but still getting one bump on each side of my labia minora every other month so Im a bit confused

    #42973
    Bri
    Participant

    Hey guys, I’m new to this forum. I am going to explain some back story so you can kind of understand my situation as best as you can. About 10/11 years ago i developed sores down there. They were on the outside of my labias. VERY painful. When i was first examined i was immediately told i had herpes. (No tests were done this was just diagnosed visually) This was by my gyno. The medication she prescribed me wasn’t working so i went to the hospital because i was in unbearable pain. After a bunch of tests including a swab, my results were that i had shingles. At the time i was only 19/20 years old so i was a very rare case. After proper medication it cleared up. Fast forward to the present and i have developed sores again, not in the exact same area but very similar sores. I went to the hospital and upon observance i was again told i had hsv 2. Within the ten years between my shingles and now i have always gotten std testing at every annual gyno appointment. This was always done through blood tests and the normal swab that they do. I never once got a positive or abnormal test result. Now, i am shocked, scared, and just dont understand. The doctor from the hospital this time said that they probably misdiagnosed me last time because shingles and hsv 2 are in the same family. I was swabbed again and i am waiting on those results. Has anyone been tested negative with all their blood tests but still had herpes? Is that actually even possible? Why would the blood tests not be accurate enough and be able to give false negatives? I just have never heard of it before. Im at a loss for words and dont really know what to expect as i wait for my swab results.

    #42951
    PurpleLotus
    Participant

    Hello I was recently diagnosed and am having my first outbreak and am trying to grasp everything. I was a victim of rape and everything that could have possibly gone wrong did. When I got tested initially they didn’t include hsv testing so I will never know if I contracted it from that horrible experience or if I contracted it from my now ex. I have not been able to sleep and have just been crying over feeling like my life is over

    NyGirl03
    Participant

    Hey guys I’m back again . So it’s weird to me bc I got checked for all STDs bc I had sex with a new partner they asked if I wanted HIV testing I said yes but didn’t know I was getting tested for herpes as well . Two days later I got the call that I was diagnosed with hsv-2 I had no symptoms the doctor said she couldn’t do anything and didn’t offer anti virals how weird is that . It’s about two weeks since the diagnoses and I get very inconsistent symptoms . I’ll get a random tingle maybe an itch . I did have one single bump appear in the upper pubic hair zone like right below my belly button it mimicked an ingrown hair and it was gone within two days . I found a another bump even tinier on opposite side a little lower but still in the pubic area . It went away within a day or two as well . These bumps don’t hurt they don’t itch they are there and they are not . I’d also like to point out that my blood tested positive which means I would’ve had this for a while , back in January I had a procedure done where they checked for ALL stds and I came back negative. I had one partner before the procedure and didn’t have sex for two and half months after the procedure. Since March I had sex with that same partner (who had sex with one person for that period of time thag I didn’t have sex with a condom ) and I had my most recent partner whom I was with for about a two weeks when I got the diagnosis . Should I get retested ? Should I ask for antivirals? A lot of things just aren’t adding up

    #42484
    Kyndra
    Participant

    I just got diagnosed. I started having pain that turned into an incredible amount of pain I have never experienced. I have an autoimmune disorder and take immunosuppressants…I tried assuming it was something else… anything else. So I pushed off going to the doctor. Then it was the weekend and I couldn’t get in when it had gotten much worse. I finally went and the doctor said it was likely I had herpes…they started me on meds and did testing…gave me lidocaine..etc… I feel just so defeated. I have been reading a lot and trying to get my head right about this but all I keep feeling is how am I going to find someone who will be ok with this. How will I be able to start a family. I have been talking to one guy who is so sweet and I think we could be great together, we haven’t slept together yet..but have talked about it. Now I have to tell him this and all I keep thinking is I wish there was a way I didn’t have to.

    My doctor asked if I want to be on suppressive daily therapy or wait and see how many outbreaks I get and how bad they are after this initial one. I don’t know what to choose. I am leaning towards daily suppressive therapy because of my immune problems already but what if I do that and I am one of those percentages who get one outbreak and then don’t get another one which I have read about.

    #42372
    treesandtravel6713
    Participant

    I had my first outbreak a few weeks ago, and it was horrifically painful. I got a blood test about two weeks after the outbreak cleared, and got a negative — but then realized it’s recommended to wait 8-12 weeks after the initial outbreak to build up enough antibodies to test for. I wish I had realized before testing! It may just take some time — but ugh, in the meantime it’s the absolute worst. I hear you!

    #42270
    Molly
    Participant

    Hello, I am new here. Divorced after 23 yrs of marriage. Was told as a teen after an assault that I had HSV..fast forward two marriages and a couple of long term relationships, never passed on HSV nor had any notable symptoms. Talked with my doctor during STI screening (husband had affair) and she didn’t think testing for HSV was necessary or anything to worry about after all of these years. Now here I am finding myself dating for the first time and whether to share my story with someone that is not a serious relationship. Also a first for me, being intimate when not really in a relationship with someone. Bottom line is, things got really hot and heavy and I did not share this info. A condom was used the first round but regrettably not the second. I’m terrified after all of these years I could infect someone, and two that I didn’t have the talk first. I feel disgusted at myself for the lack of integrity. Please, how do I fix this? I haven’t seen him since due to schedules etc and that was two weeks ago. I know the feeling of having someone not respect my body from the assault and husbands affair..I am no better 😢

    #42183
    Broken heart
    Participant

    After I found out my boyfriend and I were positive i became so distant with him. I couldn’t think or want anything from him. I know I am the reason he has what he has. Months have passed since our diagnoses and he has been patient, loving, caring. But it didn’t matter to me, all i can think about is what we have. When he touches me all I wanna ask is if he has it at the moment. Which I’m sure it has made him feel very ugly about himself because I haven’t let him touch me. He has had some terrible outbreaks and I haven’t had any, that I’m aware of but that’s all I picture whenever we try to be intimate. He has tooken the news way more calmly than I have. I am a terrible person. I honestly don’t understand how he has outbreaks and I don’t. Ive been grateful that I don’t have it as bad but angry at myself trying to figure out who gave it to me. We weren’t together for a whole year and I Slept with maybe 5 people.I keep trying to think back if I ever felt abnormal down there but I cant think of anything. I am ashamed of myself in so many ways. I thought about suicide before I had this diagnoses. It has amplified that feeling even more lately, I cheated on him recently for the first time. Its something I have to live with for the rest of my life. I didn’t think I would ever become this person (a cheater). It didn’t start off that way he was my friend. Whats worse he was a guy from work, I told him about what I had and after we had relations. But by the end of it he said he felt sorry for me and wanted me to feel better. After I told him we were still talking as friends he made me forget that I was broken, it was intoxicating… almost like a drug. I didn’t realize I was feeling more for him until I saw he had hickies on his neck by another person…it broke my heart. He has become a stranger overnight.During my time with him, I was falling out of love with my boyfriend. I don’t know maybe I was never in love, we had so much bad history with each other that all the good he did for me vanished. Within one diagnoses, one argument, it popped my bubble of the love I had for him. I wanted to forget I ended up losing my friend and someone that loved me. I don’t know how anyone can be so calm or accepting of this, I’m so upset. How do you even get past this? This whole time I thought I was clean. Why do doctors not tell you its not in the STD testing. Why not warn others, this is not normal, why discourage people from having herpes test? I wasn’t even aware it was an option unless you have an outbreak. all of my doctors looked at me like I was crazy for being this upset. They told me it was not a big deal, how could it not be? My freedom of sexual interaction will always be clouded by this darkness. I will always have to tell them, nothing will be the same again.

    #42054

    In reply to: Just found out

    gillisjill
    Participant

    How did you find out? I’m waiting for dr appoint on 7/8/20 for testing but for the past 5 days I’ve been suffering from excruciating pain in my vagina and anus. It actually looks like an alien down there. I’m almost positive that I will be diagnosed with Herpes because I don’t know what on earth else it could be. I’m kind of numb right now and just want to be able to pee without feeling like my world is going to end. Apparently this could have been dormant in me for several years and never flared up. I find it hard to believe and am seriously doubting my husband of 32 years monogamy. I KNOW I’ve never strayed but I’m questioning if he has. This is all just so awful!

    gillisjill
    Participant

    For the past week, after having a deep tissue massage and being left feeling quite ill, I have developed symptoms of UTI or yeast infection. After a few days of that I discovered blistered in and around my labia. Had a phone consult with OBGYN and she believes I have genital herpes. She has prescribed Valtrex and set an appointment for me to come in next week for testing. I’m on day 2 of the Valtrex and in absolute agony with my vagina.
    First off, I’m absolutely devastated because I’ve been married for over 30 years and have not been with anyone else. Dr said this could have been dormant for decades. I just don’t understand. I’ve had 2 children, 28 and 26 years old and I’ve never had an outbreak. Have you heard of this???

    #41997

    In reply to: Help

    angel
    Participant

    Hi, Ry… I was diagnosed in 2009. I was hurt, angry, sad and confused. Confused because my doctor found it in my blood work after I asked for a full panel of STD testing. I was there in the first place because my boyfriend at the time told me he had discharge from his penis… He was a habitual cheater (asshole).
    In my frustration and anguish I realized that my life has changed forever, it’s not over it’s just a new normal. My hope is that you will see that time will heal your despair as it did mine. GIVING YOU THE BIGGEST, TIGHTEST SQUEEZE VIRTUAL HUG.

    hannah
    Participant

    Hi everyone. I am 22 and was diagnosed with genital and oral HSV-2 about 3 months ago. With the whole COVID situation, I have not had any type of sexual encounter since my diagnosis until yesterday. I met a guy on Hinge, we went on a date, and I took him back to my place. As this was my first time since my diagnosis, I was a little unsure of when the appropriate time was to tell him my status. As we are making out, I stop him and tell him there’s something we need to talk about. I asked him when he was last tested and he said recently, maybe a month or two ago. I ask what he was tested for, and he said the standard testing. This is when I mention that I am positive for general herpes. I then explain that I am on daily suppression to prevent the spread to partners. He begins to freak out, asking what that means. I tell him the risk for transmission is very low like 1-2%, seeing as I do not have an active infection and I am on the suppressive medicine. He seems apprehensive but we proceed to have (brief) sex. He then goes to the bathroom for several minutes before coming out and asking if I was ready for round two. I said yeah, of course. He then puts on his clothes and says he needs to get another condom from his car, all the while asking if I’m absolutely sure the risk is like 1%. I assure him it is very low. I also mention that they don’t test for herpes in standard STD testing, so theoretically he doesn’t know he’s NOT positive. He seems to be listening, saying that it’s messed up they don’t test for it and what not. As he leaves for his car, I say I think he’s probably not coming back. He says he wouldn’t do that. Sure enough, he is gone for several minutes before he messages me asking how sure I am of the risk. We get into a back-and-forth on the risks and what not, me trying to assure him the risk is very low. He then asks me why I didn’t tell him before we kissed. This shocks me as I had NEVER read anything about needing to tell someone you had oral herpes before kissing if you didn’t have a cold sore! After some more back and forth, him on the defensive, I tell him he should just go if he’s THAT concerned and he does.

    I’m someone who pretty much only has casual sex. I’m worried about how I should go about telling future partners. Do I need to tell them before we even meet? It seems almost self-degrading to have to say HEY, I HAVE HERPES to someone you barely know before you even meet them. I am not ashamed on my diagnosis, but I know a lot of people have no knowledge of herpes at all. Will I need to educate every potential sexual partner to convince them that I am safe to have sex with? I don’t blame them, before my diagnosis I didn’t know much about herpes at all either, so I understand why they react the way they do. Just wondering if anyone has any advice about this?? I would really appreciate it.

    #41583
    jennifer_62507
    Participant

    I’m so confused. Around August last year I wasn’t thinking and unprotected sex with a guy I started talking to. I started to feel itching nonstop and saw a doctor and she told me I tested for trichomionais which is a very treatable/curable std with antibiotics. It’s a parasite that you get from having sex. I haven’t had sex since then. So it’s been about 10 months since I’ve been sexually active.

    Around late September I reconnected with my high school sweetheart and we decided to start seeing each other but he was leaving for deployment. And due to that we haven’t been sexually active. I went in late January to get my yearly done and ask for an iud.

    A few weeks later she informed I tested for positive for hpv high risk. The one that could have cancel cells and wanted me to get check for them. I haven’t been able to due to the virus going on. Cause I have to pay out of pocket due to being a bartender and well I’ve been out work due to this.

    Anyway late February she gave my iud. Which took 3 times to get it in. We had to go get a ultra sound to get it to go in. I have a tilted uterus. Didn’t know that was a thing. Two later I noticed a strong smell that wasn’t my normal smell. I thought it was just my ph balance adjusting to the iud. Cause I’ve read many people having a strange smell to their iuds. Well a few days after the smell I noticed a bump on my left vulva.

    I was leaving for vacation. My obgyn was on maternity leave. I decided to get it checked out when I came home two weeks later. But my bump never hurt, it never hurt to pee, etc. it was just in a spot that was super inconvenient and would rub against my pants. But was never painful or anything.

    I came back home around this time it was late March and went to the clinic to be the seen the same day and she went oh this herpes and was smiling about it. Which confused me. She did a culture swap test. But I’ve read they can be false/positive which are higher chances for false/positive when you wait to get them done. She gave me the medicine which made the bump go down within a week. But then a week an half later I had a little rash on the other side of my vulva. Didn’t hurt or anything it was just there.

    I asked my obgyn to take out my iud when she came back from leave. That was about a week ago. I know I should have mentioned the hsv testing to her but didn’t think about it cause I wanted my iud out from all the cramps I was having from it. My smell has gone back to normal and I haven’t had a bump or rash since then.

    I know I should get tested again and have to tell my boyfriend who is deployed which makes it very hard. Cause I’m already stressed enough. But my question is does this sound like herpes? Or was it just a terrible reaction to my iud?

    I keep beating myself up overthinking about how I was stupid a year ago and didn’t wear a condom when I knew I should have but I’m human. It’s just beyond frustrating

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