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  • #41583
    jennifer_62507
    Participant

    I’m so confused. Around August last year I wasn’t thinking and unprotected sex with a guy I started talking to. I started to feel itching nonstop and saw a doctor and she told me I tested for trichomionais which is a very treatable/curable std with antibiotics. It’s a parasite that you get from having sex. I haven’t had sex since then. So it’s been about 10 months since I’ve been sexually active.

    Around late September I reconnected with my high school sweetheart and we decided to start seeing each other but he was leaving for deployment. And due to that we haven’t been sexually active. I went in late January to get my yearly done and ask for an iud.

    A few weeks later she informed I tested for positive for hpv high risk. The one that could have cancel cells and wanted me to get check for them. I haven’t been able to due to the virus going on. Cause I have to pay out of pocket due to being a bartender and well I’ve been out work due to this.

    Anyway late February she gave my iud. Which took 3 times to get it in. We had to go get a ultra sound to get it to go in. I have a tilted uterus. Didn’t know that was a thing. Two later I noticed a strong smell that wasn’t my normal smell. I thought it was just my ph balance adjusting to the iud. Cause I’ve read many people having a strange smell to their iuds. Well a few days after the smell I noticed a bump on my left vulva.

    I was leaving for vacation. My obgyn was on maternity leave. I decided to get it checked out when I came home two weeks later. But my bump never hurt, it never hurt to pee, etc. it was just in a spot that was super inconvenient and would rub against my pants. But was never painful or anything.

    I came back home around this time it was late March and went to the clinic to be the seen the same day and she went oh this herpes and was smiling about it. Which confused me. She did a culture swap test. But I’ve read they can be false/positive which are higher chances for false/positive when you wait to get them done. She gave me the medicine which made the bump go down within a week. But then a week an half later I had a little rash on the other side of my vulva. Didn’t hurt or anything it was just there.

    I asked my obgyn to take out my iud when she came back from leave. That was about a week ago. I know I should have mentioned the hsv testing to her but didn’t think about it cause I wanted my iud out from all the cramps I was having from it. My smell has gone back to normal and I haven’t had a bump or rash since then.

    I know I should get tested again and have to tell my boyfriend who is deployed which makes it very hard. Cause I’m already stressed enough. But my question is does this sound like herpes? Or was it just a terrible reaction to my iud?

    I keep beating myself up overthinking about how I was stupid a year ago and didn’t wear a condom when I knew I should have but I’m human. It’s just beyond frustrating

    #41485

    In reply to: Help! False Positive?

    Summer
    Participant

    @hiyaitsme, yes the process to get the western blot was expensive and logistically hard to get. My Hgg value was high though so I was concerned that I somehow did have it without any symptoms which is why I decided to do further testing. I’m really happy I got the western blot for closure but it is definitely a personal decision whether or not to get it. I don’t know much about the inhibition assay from quest but that sounds like a good next step before considering the western blot!

    Yola
    Participant

    Update: correct number for western blot test ordering is 206-520-4600 for confirmatory test.

    @jmeishen idk about that. If you have a doubt in your mind get the western blot test done. 254$ out of pocket if you want to know for sure.

    I never had any symptoms not even flu like symptoms or pain on thighs.

    I did get diagnosed with a hormonal imbalance that was causing me to have frequent yeast infections 3 years ago. I got on birth control and did boric acid suppositories for 6 months and it is under control.

    It’s always good to get a 2nd opinion go to a new dr get testing redone 3 months after your last test. Or get the western blot.

    jmeishen
    Participant

    Hi guys! I’ve been reading your comments about the testing and now im curious as to if I actually do have the virus. I am pretty sure that I do. At first I was really convinced that it was a severe yeast infection that lead to the sores, but then I started having flu symptoms and I thought that was coming from students at the college I was at that were getting sick but then as I started reading, I saw that flu symptoms were attributed to herpes. I went to the doctor and she said it probably was so I got a blood test done at Quest Health, and they said I tested positive. the reason I am wondering if I’m actually positive is because I’ve never any symptoms with tingling or pain in my legs or shooting pain that usually comes with an outbreak, which I definitely had. I also never got any test results from Quest, just my doctor saying that I was positive. no test results or anything. Is there a chance that it was really just a really bad yeast infection?

    • This reply was modified 2 weeks, 6 days ago by jmeishen.
    #41472
    Jynelle
    Participant

    @J, I wasn’t sure if u were asking me. This may sound silly but I have no idea the difference between igg and igm testing/values. There are no bumps, no lesions ANYWHERE that’s why I’m so confused. I had blood drawn right at the office and that was it. No explanation, no nothing.

    Yola
    Participant

    Western blot test is top of the line test for HSV 2. It is a bit pricey and only Washington university does the testing. I am doing mine in june.

    My ex tested negative btw. He got retested again
    And he and I had issues in our 5 year relationship 2 years into it the sex stopped due to health reasons on his behalf.

    We had sex in august and november. And that’s it. The blood test date back 12-16 weeks.

    I had both IGG and IGM done and got different levels for both.

    I’ve come to terms with affecting the diagnosis if I do have it. If I don’t have it well…… I’ll be happy and turn into a nun lol

    Look into the western blot.

    #41431

    In reply to: Lostlost!

    busa0503
    Participant

    Hey girl!! My blood results came back in a day, so you shouldn’t be waiting long. I’m in a similar situation. But don’t feel embarrassed! Because it is way more common than you think. I just found out I was HSV 2 positive a few days ago. I’ve been doing a lot of reading and I feel a lot better about it now. The same thing happened to me. I was with one partner for 6 years, and we broke up. I was with ONE person after him and got it. It’s hard to approach, because even in my case, I could’ve had it already and been asymptomatic all those years. I was never tested previously so I wouldn’t know. It’s a hard situation to handle, because you can’t point your finger if you don’t 100% know if it was from him or if you had it. Even if you had prior testing done, sometimes you could get a false negative if it’s too soon and it didn’t detect enough antibodies. A lot of times, people have it and don’t even know. But again, don’t feel embarrassed or lost! If the results are positive, you have this whole page of lovely women going through the same exact thing! If you need someone to talk to about it, let me know. We can exchange numbers or something!

    #41412

    In reply to: Looking for friends

    Yola
    Participant

    Hello! I exited my 5 year relationship in the fall. I always get tested at kaiser so never came back with anything. I got a new insurance plan and the new dr tested me for it and it came back low positive. I never had symptoms at the time I got tested I hadn’t had sex in 3 months and even my partner after my ex tested negative too. I got tested again and it is still a low positive. How my previous partners never got it idk. It is possible you’re an asymptomatic carrier of HSV 2 and didnt know it. Most dr offices wont test you for it unless you have symptoms or if it is part of their full testing for STIs or multiple sexual partners if you are monogamous they wont consider you high risk. (I never had multiple sexual partners I always stuck to one person).
    From what I understand a majority of HSV 2 positive people do not have symptoms however only 20% or so experience actual symptoms so it is possible you were a carrier and were viral shedding while you slept with him, and he got it. His immune system didn’t fight it off like yours or mine does.

    To this day neither my ex of 5 years or my previous fwb have tested positive.

    You will be ok. I have researched asymptomatic hsv2 for the last few weeks now and I have a better understanding of it. Unfortunately u will never know when you are viral shedding so it is best you use a condom at all times.

    Stay strong girl! It’s a weird sti that is hard to detect do not beat yourself up about it and trying to pinpoint when and from who you got it will drive you nuts. It does hide in your nervous system for years dormant until it wants to show itself. Do not beat yourself up over this it can happen to anybody!

    #41398

    In reply to: Advice needed

    russoa0829
    Participant

    Hi Betty, did you get your test results? I’m testing negative with symptoms. Curious if you tested positive later. I hope all goes well
    with your results.

    #41380

    In reply to: False Negative?

    russoa0829
    Participant

    Hi, I don’t know if I have received a false negative but I do have all the symptoms without them breaking open, though I do have pimple-like blisters that come and go and never burst. I also keep testing negative on my blood tests. It has been a challenge to get swabs when the bumps are present. The doctor tells me they are too small. Have you had your blood test? If so, what were your results?

    #41372
    Nici
    Participant

    Hello! Interesting how many docs use folliculitis as their go to diagnosis. It’s lazy from my perspective. Question: What has the time frame been between the physical appearance of the bumps and your visit to the doc for testing? Are you just getting swabbed or have they done blood testing as well?

    #41368
    russoa0829
    Participant

    Hi Nici, my situation is a bit similar to yours. The doctors I have seen all tell me it’s folliculitis. I get small pimple-like bumps along with itching, groin pain, tingling, and nerve pain in my thighs and glutes. One year later and I still have symptoms that have only progressively gotten worse. What makes this difficult is I keep testing negative. I was given antivirals once at planned parenthood as a trial to see if symptoms improves, they did.
    However, I was referred to see my primary care doc who refuses to give me antivirals when I test negative. I don’t know what to do but the symptoms are at times unbearable and make me feel heavily depressed.

    #41367
    russoa0829
    Participant

    Hi Nici, my situation is a bit similar to yours. Still up until today, the doctors I have seen all tell me it’s folliculitis. I get small pimple-like bumps along with itching, groin pain, tingling, and nerve pain in my thighs and glutes. One year later and I still have symptoms that have only progressively gotten worse. What makes this difficult is I keep testing negative. I was given antivirals once at planned parenthood as a trial to see if symptoms improves, they did.
    However, I was referred to see my primary care doc who refuses to give me antivirals when I test negative. I don’t know what to do but the symptoms are at times unbearable and make me feel heavily depressed.

    #41365
    russoa0829
    Participant

    Hello to all of you! I’m so thankful I have come across Dr. Kelly’s work and this forum. With that said, here is my story:
    I had an oral exposure a year ago, one week later I have a fever, body aches, headache, and have two off-white small painless bumps develop inside my bottom lip. Mind you, I had already spoken to the man I was dating at the time about our STD status, he repeatedly told me he did not have any. One week later we have unprotected sex and within 3 days I have vaginal swelling, itching, and white incredibly small pin-size bumps that are flush to my skin. I now also have groin pain, tingling, and sharp shooting pains into my thighs and glutes. I have tested many times with an IgG (recently too), several culture swabs (of the skin only, no bumps present), and a Western blot at 8 months post exposure. I took antivirals for 1.5 months after submitting my WB test, symptoms did subside significantly. However, I am still testing negative and my doctor will not put me on antivirals, he thinks I am well..negative. Has anyone tested positive this much later after exposure? I read somewhere that having varicella (chicken pox) as a child could affect blood
    results for HSV1/2. Could this be true? Any suggestions?

    #41355
    Jynelle
    Participant

    So I went to my gyno and requested to be tested for STDs. I was in a relationship for 11 years, no cheating that I’m aware of. I reconnected with an ex from over 20 years ago and we had oral and vaginal sex. I requested testing from my gyno after my “new hook up” just to be safe. I had no symptoms, just thought it was the “normal” thing to do after being sexually active with a new partner, after being in a long term relationship. I have the blood work completed. I receive a phone call from staff saying “your results are fine call us if you need anything “. A few days later I revive another call from gyno doc and she said I was positive for HSV 1 and HSV 2…my world crumbled immediately. How could this be? I’ve never had ANY symptoms. I told my recent “hook up” and he said he would get tested (a month later he tells me he’s “negative “) i don’t know what to think or how to not feel terrible. I have not one single symptom and never have. I’ve read about discouraging testing with no active lesions, etc. but I thought I was doing the right thing by being tested. I don’t remember what I exactly asked the gyno because I was in utter disbelief, but I know she rambled off some numbers and remember her saying something about my “level was 14”. Someone please help me wrap my head around this. I’m devastated, ashamed, and riddled with anxiety.

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