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  • Jade

    I recently got tested a couple days ago after my boyfriend suggested. I had no symptoms whatsoever and had previously been treated for chlamydia. I find out that I tested positive not only for chlamydia but also HSV1. I’m not so sure he got it from me since he never went to get tested and cheated on me. My whole life shattered when 15 years of my life went up in flames in an instant. The worst part is that he accused me of knowing all along when I was just as shocked and confused as he was. I was angry and blamed myself for our relationship being over. I felt disgusting and thought the life we planned together could never happen for me. Who will want me now ?


    I am waiting on my diagnosis (both oral and down there)

    My symptoms are mostly all oral (I had some discharge and very mild itching burning down there but nothing else) orally however I have sores coming through, red/bruised lips, burning and a white/yellow tongue.

    Anyway. Time for my “worst luck” story.

    About 6 months ago I came out of a very unhappy 8 year relationship. I didn’t think I’d find anyone who ticked all the boxes, treated me like a princess, made me believe in that “once in a lifetime” love but I did. We are very new but we’ve known each other for quite some time. Anyway. I had a one night stand in between breaking up with my ex and meeting my person🥺 I’m pretty sure that’s where if I have it, I got it from. He denies any symptoms or knowing.

    Me and my new man have kissed lots (before my mouth symptoms) and I have given him oral. I did not have any sores or anything at the time. I have since refrained from sex because I’ve been worrying I have it so I’m thankful I’ve done that. But I am worried I may have passed it to him before the signs showed up? Is that likely?


    I mean prodome symptoms not profile


    Hi guys, I was recently diagnosed with HSV-1 in November 2021. I had a pretty bad first outbreak but got it sorted with meds. However, since then I have had the typical profile sypmtoms a lot and no sign of any blisters/sores. Basically, I get the shooting nerve pain down my legs, tingling down my legs and butt, a lot of vaginal itchiness and lower back pain. A strange thing that happens when I get these symptoms is I get one small red spot that forms on my butt cheek. It’s only one and they look like pimples and don’t blister or itch or hurt. I’m just concerned because why do they appear every time I get these prodome symptoms? Does anyone else get this? Is this a mini-outbreak? Does this mean I’m shedding/contagious all the time? Also, I feel like my nerve pain gets triggered by alcohol, is this common? I’m really nervous because I’m constantly worried if I’m contagious when the nerve pain hits. Or is this all just post-herpatic nerve pain? Will it go away?


    I’m in my 50s , we’re not married but been togeher over 10 years! And the same story.. he had/has no symptoms.. and neither of us have been with anyone else! I know exactly how you both are feeling!!! Never saw this coming!!

    Jess Jess

    Hi KD,

    I’m in the same boat as you now. I just turned 30 over the weekend and noticed some sharp pain down there but figured it was period related because I had just started. Then the Monday after the weekend, the pain got much worse and I noticed bumps on me and immediately called my DR to make an appointment. She told me she thinks it’s definitely one of the HSV’s and took a swab to test. I’m still waiting on my results but I know how you feel. I cried in the patient room and when I got into my car. I’ve been with my partner for over 5.5 years and never had any signs or symptoms until this past weekend. My whole world has turned upside down at this point. Just know you aren’t alone!


    In reply to: Confused on results


    I have no advice , but I’ve ask some questions and no one has answered so I at least wanted to reply..
    My gf and I been together 10+ years, we are in our 50s and monogamous
    I was diagnosed 2 weeks ago and test reveal that this is a new infection for me, meaning I’m newly infected.. no antibodies
    My bf had cold sores as a child but hasn’t had any other symptoms all these years..
    But here we are 😩. I’m type 1, but genitally… I don’t get it, and I’m gonna have to have an appointment I guess with my dr just to understand this whole mess… idk if I can pass in genitally, as it’s oral, but down there.. very frustrated and not how I expected to spend my golden years for sure😔


    Hi, I’ve had genital herpes for 20+ years, I’ve had varying degrees of symptoms during that time. OBs had slowed in recent years until I was only having 1-2 per year until last June when everything changed. Since then I’ve had OBs approximately every 6 weeks, again with varying degrees of symptoms, currently feels as bad as my first OB. The only thing I can put it down to is having had the covid vaccine 2 weeks before the OB in June. This is starting to rule my life again and it’s really getting me down. I really need some help/advice/support.


    In reply to: Newly Diagnosed


    I completely understand this, I have had constant genital herpes symptoms for 6 months. I’ve tried medication, diet change, natural remedies I’ve tried everything in the book and my symptoms are so severe nothing seems to work! I haven’t even had a day of relief for 6 months which I am aware is not normal so hopefully you get some relief soon. I unfortunately don’t think I can help much on the mental strain, I think I’ve mentally got worse because my symptoms just are not clearing! All I can hope is one day we get some relief and we don’t have this mental struggle forever


    Hi everyone, I am 21 y.o., diagnosed with genital herpes 3 weeks ago. Initially, I thought it was a UTI because of the burning sensation and constantly needing to pee with little output, as did the NP I had seen. A few days later, I developed red patches that were very itchy. The next day, I had gone to urgent care, but I did not have any sores at the moment, so they wouldn’t test me for HSV. The following day, sores had appeared and I immediately went to a different urgent care. I then found out I have genital herpes after a swab test. Along with this diagnosis, I had also been told by the original NP who thought it was a UTI, that I actually had a yeast infection and BV, all at the same time. With the sores, I had flu-like symptoms (fever, chills), excruciating itchiness and pain. I couldn’t even sit or lay down comfortably, let alone walk. I also had to pee in a bathtub full of water (read about it online) to help the burning sensation and bowel movements were very painful and honestly, I think I had gotten constipated. I was given Valtrex for 10 days for the herpes, as well as medication for the yeast infection and BV. My initial outbreak was extremely painful and honestly traumatizing, I was bawling my eyes out everyday.

    Fast forward 3 weeks, here I am. I currently am not partaking in suppressive therapy, but I am thinking about it because the slightest itch makes me paranoid, thinking I’m going to have another outbreak. Just a few days ago, I saw another NP and turns out I have a yeast infection and BV again. As stated above, I’m only 3 weeks into my diagnosis, but it has taken a toll on my mental and emotional health. Not that I worry I won’t be in a relationship again, but more of I stress over another outbreak. I’ve been incredibly stressed and have also gotten my period since, and luckily, no new outbreaks. I started taking vitamin C everyday and recently purchased Lysine.

    I know that herpes is more common than people think and just that the stigma surrounding it is so awful, but I have had a lot of times where I feel as if I don’t want to be alive anymore because of this diagnosis and my worry of future outbreaks. I’ve read other forums and I know that symptoms and experiences vary from person to person, but a lot of women had said they would have an outbreak even from masturbating, whether with a toy, water, etc. I am a person who has a high sex drive, so you could imagine the stress I have knowing it’s possible to have another outbreak from that.

    Since the ending of my initial outbreak, I took precautions and bought several new feminine products. Cotton underwear for when I have outbreaks or even just an itch, medicated anti-itch wipes (OTC), fragrant-free soap that has colloidal oatmeal (for down south), switched to sensitive skin body wash, and also have unscented wipes specifically for my genital area.

    I know that was a lot of information, but I wanted to share my experience, as well as sharing the products that have helped. If anyone has any advice/tips regarding preventing outbreaks, products/supplements to invest in, their opinion on suppressive therapy, how to deal with mental/emotional toll, or really anything, please share! Like I said, I am extremely new and I have lots to figure out. Oddly enough, deep down I keep thinking maybe my herpes results were a false positive, considering the yeast infection and BV, is it possible? Or am I just in denial?

    Side note: I have a great support system, being one of my best friends and my parents. I also struggle with mental illnesses and am soon to be back on those medications, hopefully that will help with my anxiety over future outbreaks and the increased depression since my diagnosis. I have yet to get bloodwork done, so I am unsure if it’s HSV1 or HSV2, the person I had got it from has HSV1 (it was a fling, I was unaware, and he claimed to be unaware of being positive)

    Thank you all in advance, I really appreciate it and am so happy I found a forum where I do not feel alone. Wishing you all the best!


    I’ve had HSV2 for 16 years not had 2 out breaks in all those years until now. Same kind of symptoms as you and this out break has lasted about 6 weeks now


    Hi, I’ve had HSV 2 for two years now and I’m getting back to back outbreaks. I have swollen lymph nodes, a few sores and my body aches all the time. One of my friends told me that maybe maybe it’s not HSV outbreaks, but vulva cancer. These symptoms seem very similar. I was tested and did has HSV 2 years ago. I’m just a nervous wreck and want to cry. I have at least two outbreaks a month. My sores are very painful. Does anyone else have a lot of outbreaks? I sometimes miss the signs of an outbreak coming on and then the sores form. I’m so sad. Can anyone give me advice. 🙁


    Hello. I’ve had several waxwings and have not had any problems. They always wear gloves and I never go if I feel any symptoms coming.


    We’ve been together a little over a year. We’ve never used protection. I’m a hypochondriac so I’ve always worried any little bump could be herpes and he’s always told me, don’t worry it’s not a big deal..everybody has some version of it. He said if I had it we’d figure it out together. Now I’m actually experiencing symptoms that really make me think I have it…he wants me to get tested so I can stop worrying..but I am TERRIFIED he will leave me if I test positive. He told me today honestly he doesn’t know how he’d react or how that might change our relationship, but he said no matter what he would always still love and care about me. I asked him if I do end up being positive if we could continue our relationship just without sex or something and his response was “well what would I do then?”….I’m absolutely terrified of losing him as a boyfriend, but I do t want to assume it’s nothing and risk his health either. I feel at a total loss…also it’s currently healing so I’m not even sure if I would be able to get tested accurately or not….I don’t know what to do..I feel HORRIBLE and I just don’t want to lose the love of my life to a stupid skin condition….I’m 90% sure he’d leave me…somebody please help…I’m so lost and hurt


    Hi everyone, I am new here and wanted to introduce myself. I am 34 y/o. Have been married for 13 years. I contacted vaginal herpes from my husband who had his first outbreak during his first marriage. He was open with me about it before we ever became intimate. I always assumed I would eventually get it as well despite taking precautions. I had my first outbreak a little over a year ago. It hit me really hard. Multiple outbreaks in the first 6 months even though I took a daily antiviral. I always get flu like symptoms as well as vaginal ulcers. I have multiple other health issues that affect my immune system. I have Fibromyalgia, arthritis in my back and neck, PCOS, and Endometriosis. I have never had a positive test come back but it has been hard with Covid to get into the Dr to get swabbed in a timely manner so my Dr said it is still likely Herpes. I have had a hard time getting straight forward answers. I have always been told that flu like symptoms ONLY come with the initial outbreak and that vestules are always present.I always have flu like symptoms and have never seen any vestules. (Spelling??) I have been tested for other STDs and skin conditions and I come back negative for everything else.

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