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  • #39561

    Sammy Jo

    Hi there,
    So I was just diagnosed on Tuesday last week and let me tell you, you will get better!
    I was in the same situation, I couldn’t lay in bed or sit- let alone walk! I was walking like a penguin because I didn’t want anything to touch. My butt was sore for days because I had to sit a different way so my vulva wouldn’t touch.
    I was swollen for days- I didn’t recognize anything.
    I went to the Doctors got meds and within 3-4 days I was feeling so much better. That first pee that didn’t sting made me feel like a million bucks! It’s hard but you will get through it!



    Hi Ladies,
    So I got diagnosed with herpes two days ago… I contracted it from my ex boyfriend, who was asymptomatic so he did not know he had it. I’m still in quite a shock but before I can deal with all the emotional issues that come with this disease I have some questions about the first outbreak, and I would really appreciate if you could help me 🙂
    1. My outbreak is bad. Like really bad. I have blisters all over and my vulva is completely swollen and irritated… is it normal to have this many? I can’t sit and I can barely walk so this is really worrying me…
    2. I know this may be a dumb question… but will my vagina go back to looking the same as before? I just can’t recognize it anymore
    3. How long, in your experience, until I can walk and sit normally again? I need to go to work again soon..
    4. Does it get better?
    Thank you for your help and let’s stay strong!



    Hey all.
    I am new. I was diagnosed with both HSV1 and HSV2 almost two years ago. I wasn’t in a relationship and still am not. In the past, Ive had sores that start with what feels like nerve pain. For whatever reason Acyclovir does not seem to work as well as Valcyclovir. Recently I’ve been in between job and haven’t had health insurance and that’s when the problem started. Doctor visits were just too expensive and so was medication. I tried a lot of home remedies such as ACV baths, lemon balm extract, L Lysine etc. but nothing helps. Right now I’m experiencing some intense itching. It affects my daily life, sleeping, and my work day. It’s so embarrassing to talk about because no one I know has come out or even knows about my diagnoses. I don’t remember my previous outbreaks being so itchy. So I went to urgent care. At this point it was just unbearable. The doctors confirmed that Herpes doesn’t make you itch in the way I was describing. They prescribed medication for Yeast and BV. You know when I doctor gives you medication and you just know it’s not going to work? Well so said so done. Then I realized my soap was irritating my Vagina more. So I thought maybe it’s contact dermatitis… again I’m back at square one, soaking in baths and basically not sleeping at night because I’m itching! Now the itching is painful because I’m sure my skins more irritated. I can’t help it. I have a doctors appointment tomorrow as I now have insurance so we can start figuring out what’s going on. Is this intense itching normal for HSV2? Also, what works to make it stop!?



    Hi Elaine,

    I was recently diagnosed with HSV-1 and it came out of nowhere. I have been with my current partner for over a year. It is super confusing because although it is entirely possible one or both of us had it and didn’t know, how have we not spread it or had outbreaks until now? My doctor didn’t have a good answer, it is completely plausible to her that I received the virus over a year ago and am just now having an outbreak due to triggers or stress. My take-away, is that it’s a super unpredictable virus that continues to change so they don’t always 100% know how you got it, why or from where. Aside from doing due diligence with testing and notification, I wouldn’t spend my energy wondering why you got it, from my experience it is a neverending cycle of conflicting information. I am focusing instead on what may have triggered my outbreak, i.e. unhealthy diet, stress, etc!

    Hope this helps!



    Hi Eunice,

    I was recently diagnosed with HSV-1 as well. My doctor indicated that it is likely from unprotected oral sex, so you may not even have contracted it due to unprotected sex. I’ve been in a monogamous relationship for over a year and half, and my first my outbreak was this week. Even if that isn’t your situation, it isn’t your fault, it’s a highly contagious common disease!! I would recommend to talk to a coach or counselor, or listen to a podcast these help alot with understanding that you are by no means alone!

    Again, according to my doctor the two positives of HSV-1, are that is it is more prevalent meaning more people have it and recurrences are less likely. One of the downsides is that the first outbreak is super severe, and mine definitely has been (day 7). I found epsom salt baths really calming and helpful. Also, I tried to sleep as much as possible. I hope this at least helps you realize you are not alone and that it will get better (P.S. I didn’t believe that either earlier this week). If you need someone to talk to I am here!



    I’ve had herpes for nearly 5 years, diagnosed after a brief promiscuous period when my boyfriend of 6 years cheated on me and we broke up. But for the last 4 years or so I was taking antivirals daily so haven’t had an outbreak in years. Recently my doctor has told me that I shouldn’t be taking them daily and to stop. The first month or so was ok… No symptoms. But in the last 3 weeks I’m on my second outbreak! I also have ulcerative colitis which makes my immune system low. I’m also a nurse which is high stress.
    I’m not sure if I should go back on the antivirals to suppress the symptoms or what I should do.
    I’ve been with my partner for 4 years and he knows about my herpes but we haven’t communicated a lot about it because we haven’t had to with me taking the antivirals.
    I feel defeated and am looking for advice.



    I was diagnosed a few weeks ago and I worry about passing it on to my two teenage daughters. They use my shower all the time. My razors. My soap. My toilet. I keep bleaching and cleaning everything. We have an outdoor hot tub. I don’t want them to get it and even though everybody says you can’t get it from a toilet seat – I still use bleach on the toilet seat after I go to help protect them. I don’t want to tell my girls I have it. I told them I have shingles and that it’s not contagious but if they have any bumps or rashes anyplace to let me know and I’ll take them to dr.



    I feel like my world is ending. I am still shocked and feel like it’s a nightmare. I don’t know how to cope with it,I feel so bad I deserve this for having unprotected sex. I just need someone to talk to.



    Has anyone else been diagnosed or noticed there first out break randomly? Like they weren’t having sex anytime leading up to it? Can’t even fathom who or how it happened? I’m curious because ive heard mixed things! Like my doctor told me that it would’ve had to come from the most recent partner or recent sex but I’m reading on here that others were told differently. That it could’ve happened any amount of time ago and just now appear years or months later. My mother was diagnosed with herpes when she was pregnant with me, I wonder if somehow I was always a carrier? Is that a thing? Thanks for reading my rant.


    In reply to: Depression with Dx


    I am having a hard time, with the same issue. I never realized how many cruel jokes ppl makes about those with STI’s until I was diagnosed. I want to defend others so badly, but I don’t to disclose my status. Over the last few months some of my family members have made statements about HSV unknowing of my diagnosis.It is very hard not to let these jokes or statements get be depressed, but I am working on that daily.

    Since my diagnosis it has made me realize how uneducated people are about herpes even though so many people have HSV 2. I also wonder how many people who judge those with herpes actually have it themselves. I have seen statistics saying that 80% of those who have HSV 2 are unaware because they have little to no symptoms.

    To make me feel better I often count the ppl in the room and think statistically I’m not the only one in the room with HSV 2, so I am not alone.According to the CDC more than 1 out 6 ppl aged 14 to 49 has HSV 2. So look around the room and know you are not alone we are not alone.


    In reply to: Success Stories


    I was diagnosed my junior year in college when my bf at the time had it and didnt tell me. We ended the relationship before I found out I had it and all he said when I told him was sorry. later on after a year of trying to cope with the dx and find myself again I ended up dating this guy who excepted me but held it over my head like a sword waiting to drop (looking back I know now it wasnt healthy). I eventually ended that and met my now bf of 4 years. He is amazing and someone was correct that the quality of people you date does improve!!! Having this dx made me slow down and actually go on a few dates before committing and disclosing. He is so supportive and is open to talk about it when I have an outbreak or feeling crappy. He even encouraged me to see a counselor to help with my acceptance and try to move forward.

    There are people with success stories just try to remember that you are worthy and that it may take some time but there are caring and supportive people out there. Idk who said it previously but they were right about if you disclose to a person and they don except you then that says more about the person than you and its not worth your time.



    Hi everyone, I was diagnosed today. Im just wondering if anyone has had any similar symptoms as me? Feeling kind of concerned and not sure if this is the side effects of my medicine or not. I have had a lingering headache the past few days. I first noticed the sore about 3 days ago and went in yesterday and they called me with results today. I also have a sensitivity feeling I guess on my right leg like it’s a sore tingling, raw kind of feeling on my hip, thigh and lower leg. Very weird and random and makes me nervous. I never had any flu like symptoms. The pain of the sore doesn’t burn necessarily it more so stings to me and only when it touches other skin or when I move to fast. Thanks ladies.


    In reply to: Just Been Diagnosed


    hi taylor, im 24 and was diagnosed TODAY. I have been in a wave of feelings all day. At one point accepting of the fact knowing the facts and that at least it is not a continuous health issue I will face. But sad because I AM SOOOO YOUNG. Like another part of the day I just felt like maybe they got the test wrong and sometime they would call me back and tell me it was a mistake. I have been with the same guy since July 2018 and he has sworn that he has only been with me….. which i completely agree. I have some other issues as well (Hidradenitis) which causes bumps to form under the skin which eventually bust and ooze. These pop up on my bikini line and I have been having the issue since a little girl. That along with recurrent BV I haven’t even had sex in a few weeks honestly. I don’t know how this happened. I truly don’t. I feel you completely. My doctor told me it had to have been recent. Sounds like yours said it could’ve been from a past relationship…. How are you and your boyfriend dealing with this? Im heartbroken…



    I found out yesterday that I have HSV2. I was shocked. 2 years ago, I developed a staph infection. I took antibiotics and it went away. A few months later it came back. Since 2017 this 8 times with this “staph infection”. Not once did a doctor swap it as they were confident it was staph. On Sunday, I went to Urgent care, and the doctor saw it and immediately said it was herpes. My heart dropped. Never once did I consider it was anything besides staph or ingrown hairs from shaving. After confirming with a test, and thinking.. I realize my ex, gave it to me. I remember him having an ingrown hair and we thought nothing other it.. and both spots would line up perfectly on us :/ I am devastated. My ex also had given me gnorrehea while together. He was a horrible cheating disgusting man.
    Anyway. I was shocked. I AM shocked. And I am down right angry that none of these doctors tested it. Not once. I mostly saw urgent cares as it was inconvenient times it was start to bother me enough to need to… I’m just sad. I needed to vent badly(as you can see). I am usually so carefree and bubbly but I’m just down and sad. I’m awaiting surgery for reconstruction of multiple prolapses in my vagina as well and this news has made me hate my body.. and hate him again even more. I’m scared to ever have sex again.


    In reply to: Just Been Diagnosed

    Dr. Kelly

    I remember when I was diagnosed at 23 years old and it felt like my whole world was tumbling around me. Know that you will get through this and it is not a journey to be taken alone. If you are having suicidal thoughts, please get immediate help!

    Call 800-273-8255 (24/7/365)
    Text 273TALK to 839863 (8am-11pm PST daily)

    You can text them or call them and they will be there for you any time of day!

    I have been working with women with herpes for over a decade. We all are just normal, everyday women that happen to carry a virus. In many ways, it is no different than having the chickenpox virus, which also a herpes virus and lives with you forever. Please don’t let a little virus have power over your life. You can learn to have a totally normal sex life and develop awesome loving partnerships. I highly suggest reading my book where I share what my personal experience was like and how I overcame the symptoms and herpes stigma. If I can, so can you!
    Dr. Kelly Schuh

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